Adenoid Cystic Carcinoma
Organization International
Adenoid Cystic Carcinoma Organization International
(“ACCOI”) is an all-volunteer nonprofit organization formed to further
research and awareness of this rare cancer by:
·
Maintaining a website with information about ACC at:
http://www.orgsites.com/ca/acco
·
Maintaining an email information group where ACC patients and
caregivers share information about ACC.
You can join the email information group at the website
(www.orgsites.com/ca/acco).
·
Providing an online Doctors’ Forum for ACC. This online forum is for doctors only, and offers doctors
interested in ACC an opportunity to share information about treatment and
research. Doctors who would like to
join the ACCOI Doctors’ Forum should send an email to accoi_info@yahoo.com with
the following information: Name, title,
email address and hospital affiliation.
·
Funding ACC research. Because
ACC is rare, pharmaceutical companies do not find it economically feasible to
fund research for ACC. Large nonprofit
cancer organizations do not fund research for ACC. Therefore, ACC patients, their friends and families must help to
raise funds for research. In addition
to finding new ACC research, we are also helping to fund the molecular analysis
of adenoid cystic carcinoma, which is being done at the University of
Virginia. This project aims at
pinpointing the areas where damaged ACC genes reside. Once these areas are identified, it could lead to the creation of
drugs that target ACC specifically.
·
Providing education through the ACCOI website, its newsletter, and informational sheets
such as this one.
Tax-deductible donations to ACCOI can be sent to the
address below. You may designate your
donation specifically for research if you prefer.
Adenoid
Cystic Carcinoma Organization International
P.O.
Box 15482