| |
 | What is Rett syndrome? |
| Past Agendas |
|
Rett Syndrome Association of Massachusetts |
| ||||||||||||||||||||||||||||||||||||||||||||||
2007 Officers and Board:
Links Section
Co-Presidents:
Irene Gladstone
Maria McTernan
Vice President:
Leslie Courtney
Treasurer:
Kathy Schoener
Clerk:
Irene Gladstone
Board of Directors:
Allen Crocker
Paula Curley
Dan Fabiano
Larry Fallon
Cathy Merrill
Michele Wise
Caitlin Wood
RETT SYNDROME RESEARCH FOUNDATI INT'L RETT SYNDROME ASSOCIATION RETT SYNDROME FORUM
|
|
The Rett Syndrome Association of Massachusetts (RSAM) is a non-profit organization founded in 1989 by a group of parents and professionals to provide support, education and information to area families as well as to the medical and educational communities. The RSAM is governed by a Board of Directors consisting of parents and professionals.
Goals of the Association
- provide family support
- promote Rett syndrome awareness
- support Rett research efforts
- host support group meetings, speaker forums and family gatherings
February 8, 2007
Meeting Agenda:
** Breaking News **
Rett Symptoms Reversed in Genetic Mouse Model
RSRF announces results of a landmark study reversing the symptoms of Rett Syndrome in a genetic mouse model. The findings, by Adrian Bird, Ph.D., of the University of Edinburgh and Chairman of the RSRF Scientific Advisory Board, appear online today in Science Express. For comprehensive information on the experiment including video clips, facts sheets, and Q&A, go to http://www.rsrf.org/reversal_experiment/
.
Our meetings are usually held on the second Thursday of the month.
Check the calendar for details and a map.
**OUR NEXT MEETING**
March 8th
7:30 PM
217 SOUTH STREET, WALTHAM
(sidebar contains map link)
Upcoming events:
Annual Area Events to benefit Rett Research
May
Dancing a la Carte, Ballroom Dancing Exhibition
Cape Cod Strollathon
Boston Festival of Food & Wine or Mike Joyce at mjoyce@rbjrealestate.com
for more information and photos, visit
Rett Syndrome Research Foundation
Chef's Classic 10K Run & Celebration of Food
Post Office Square
Sharon, MA
For more information, go to www.chefsclassic10k.com
Sheraton Hotel
Springfield, MA
www.dancingalacarte.com
June
South Yarmouth, MA.
The event is chaired by Jennifer and Justin Endres.
Please contact capecodstrollathon@yahoo.com for more
information and visit www.rsrf.org to view pictures
from last year's event.
October
The State Room (formerly Bay Tower)
Boston, MA
For more information, contact Chuck Curley at
c.z.curley@verizon.net
