
News My daughter and I are trying to raise awareness for this syndrome so hopefully there's someone out there who can help.
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| July 2009 |
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Members List:
 CEO: Ashley Kastning
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Support Cortisol Resistant Syndrome |
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Thank You For Supporting CRS
Thank you for dropping by and reading about this syndrome. It is a serious syndrome that has no cure and we really don't know how to treat it. We are just treating the other problems that my daughter has gotten because of it. So far it's working, we have our good days and a few bad days.
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| What we know.
What we know: is that her Brain is telling her Pituitary Gland to tell the Adrenal Gland to give off the Cortisol, Saltine and the Testosterone. The Adrenal Gland does it's job but it doesn't get back up to the Brain that it has done it, so it is constantly told to give off more. The Brain doesn't recieve and information that it has been given off until every twelfth (12th) time it has done it. So there is all that floating around in the body. What we also know: it is not contagious. As a result my daughter has Hypertension(High Blood Pressure), her bones are of a 12 1/2 year old child and she is 8 years old, Precocious Puberty & Aortic Valve Regurgitation. |
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What we don't know. We don't know how she got it, why she got it or if she will out grow it. We don't really know how to treat it, we can just treat her other problems and hope that we don't have another attack of the syndrome. So far we have not, but the older she gets the more we have to up her medications. She is already on adult dosing on some of them. | |
What we hope. We hope we can find a reason, anyone who knows anything else about the syndrome and most importantly a cure.
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Thank You
Thank you for stopping by and hopefully we can find a cure. |