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THE N.E. CHAPTER HAS A NEW NAME! READ OUR WELCOME LETTER...

Meeting locations are found in the text of our website.

Click the calendar for the dates of our meetings and our guest speakers. There are NO meetings during January and February or July and August.

November 2018
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Click Here for Full Calendar

Members List:

Past Lead Coordinator:
Linda Osborn
Current Lead Coordinator:
Arlene Porter

Links


National Fibromyalgia Association

Fibromyalgia Network

Pro Health

Web MD

About.com

Fibromyalgia Information Foundation

National Fibromyalgia Partnership, Inc.

Devin J. Starlanyl; FM & MPS Manual

National Association of Myofascial Trigger Point

Hal Blatman, M.D.,Pain Clinic

American Fibromyalgia Syndrome Association

National Fibromyalgia Research Association

Oregon Fibromyalgia Foundation

Luc Jasmin, MD,PhD - Jasmin Neuroscience Lab

Myopain Society

Michagan FM Support Group HOPE

Health Central

Get Well from ME (CFS)

National Fibromyalgia & Chronic Pain Assn.

Women & Fibromyalgia

American Academy of Pain Management

American Academy of Pain Medicine

American Academy of Physical Medicine and Rehab

American Board of Pain Medicine

Pain.com

American Pain Foundation

Stay On Your Guard

Medications and You

Pain/Medicine/News

Partners Against Pain

American Academy of Environmental Medicine

American Association of Naturopathic Physicians

American College for Advancement of Medicine

American Holistic Medical Association

Internat. Academy of Oral Medicine & Toxicology

International Association for Colon Hydrotherapy

Nambudripad's Allergy Elimination Technique

Nat. Certification Board for Therapeutic Massage &

Americans with Disabilities Publication Center - T

fibromama.org

Dr. Jacob Teitelbaum

Disability Digest

Chemical Injury - Dr. Grace Ziem

Family Doctor

Jefferson Hospital

Fibro Action Center

ME of the UK

ME-CFS Knowledge Center

ME-CFS Community

Fibro Colition International

Fibro Center

LifeAligned Upper Cervical Treatment Center
img s.gifNortheast-Community Fibromyalgia/CFS Support Group
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nefibro.jpgBuilding Support Together  - A Support Group with Alternative Options!    
 
Our Mission 

  • To educate
  • To listen
  • To inform
  • To be compassionate
  • To care -- and most of all...
  • To bring HOPE to all who suffer from Fibromyalgia and Chronic Fatigue Syndrome

Welcome to the NEW Northeast-Community Fibromyalgia/CFS Support Group formerly known as The Northeast Chapter Fibromyalgia Support Groups. Our previous name included two separate groups - our "Family" and "Beginners" Support Groups, which met on alternate months. Our new name change currently reflects the structure of our present organization and expands our support group to include not only Fibromyalgia (FM) but also Chronic Fatigue Syndrome (CFS), and some of the other syndromes that reflect our complex symptomology. We currently have only one meeting and one coordinator. Please see below for the meeting dates and our location.

Our mission is to educate, listen, inform, and be compassionate, caring and most of all bring HOPE to all who suffer from Fibromyalgia and Chronic Fatigue Syndrome. Our Motto is - Building Support Together. Our logo - Hands Reaching Out! We are a support group with alternative options.

Our meetings were created to deal with the psychological and physiological aspects of Fibromyalgia (FM) and the other NeuroEndocrineImmune diseases and the need for information. We hope that through our eight (8) official meetings/year, you will be provided with access to help balance your life. We provide timely information on FM/CFS and its related diseases and conditions of complexities in an environment where you can feel comfortable expressing your feelings, frustrations and needs.

The meetings are for men and women...anyone affected directly or indirectly by Fibromyalgia, and/or Chronic Fatigue Syndrome. There is no limitation of participants, and there is no charge to attend any support group meeting. The individual meetings run on per meeting donations as you can afford.

MEETING STRUCTURE: Each support group meeting is approximately two to two-and-one-half hours long. Part of the meeting will be an educational process with guest speakers when available. The other part will be a time of sharing your experiences with FM and CFS per the topic of discussion and addressing questions you may have. There will be a sign in sheet at each meeting so we can contact you to remind you of the next meeting.

We will strive to present a variety of topics. Our phone squad will call once a month to remind you of upcoming meetings, health fairs and other events or you may be notified by e-mail. Meeting schedules are posted online at our Support Group's website (http://www.orgsites.com/pa/ne-fibromyalgia) and local newspapers. Each meeting allows time for business and an upcoming meeting schedule.

GROUND RULES: The following are some ground rules for the support group meetings:
1. The content of each support group meeting is confidential. What is discussed in these meeting stays in the meetings.
2. Participants of each support group meeting will refrain from judging one another. The purpose of the meeting is to support one another and benefit from educational presentations made.
3. Participants will be attentive to who is speaking and refrain from private conversations during the meeting. One person will speak at a time and others will not interrupt.
4. Participants will speak from personal experience and not relate the experiences of others.
5. Participants will not pressure others to discuss feelings or experiences.
6. Meetings will be conducted in non-smoking, handicap accessible environments.

Again, we welcome you to the Northeast-Community Fibromyalgia/CFS Support Group and hope that you will become an active advocate for Fibromyalgia/CFS and all the chronic immunological and neurological diseases.

 

THE FOLLOWING INFORMATION IS OUR MEETING PLACE FOR THE NORTHEAST-COMMUNITY FIBROMYALGIA/CFS SUPPORT GROUP FOR 2017:

THIS YEAR FIVE OFFICIAL MEETINGS WILL BE HELD THE SECOND MONDAY OF EVERY MONTH BEGINNING WITH THE MARCH MEETING. THE APRIL MEETING WILL BE WILL BE THE FIRST MONDAY BECAUSE OF THE PASSOVER HOLIDAY, AND THE OCTOBER MEETING WILL BE THE THIRD MONDAY. OFFICIAL MEETINGS ARE HELD AT THE BETHESDA PRESBYTERIAN CHURCH, 808 RED LION ROAD, PHILADELPHIA, PA 19115 1-3 PM. FELLOWSHIP HALL. Exceptions - No meetings during January, February, July or August.

DECEMBER IS OUR HOLIDAY PARTY, WHICH IS NOT HELD AT THE CHURCH.

 
Please check with our Lead Coordinator, Arlene Porter, 215-393-3493 for the accuracy of the times and dates for all Philadelphia meetings. Times and dates are subject to change due to the availability of their location.

MEETING DATES FOR 2017
NO MEETINGS JANUARY OR FEBRUARY
March 13, 2017
April 3, 2017
May 8, 2017
June 12, 2017
NO MEETINGS JULY OR AUGUST
September 11, 2017
October 16, 2017
November 13, 2017
December 11, 2017

 
Our Support Group's DEFINITION

FIBROMYALGIA

AS PER A SENATE REPORT ON THE LANGUAGE REGARDING FIBROMYALGIA PASSED ON 9/30/93, FIBROMYALGIA SYNDROME (FMS) IS A CHRONIC PAINFUL DISORDER CHARACTERIZED BY WIDESPREAD MUSCULOSKELETAL PAIN, STIFFNESS, CHRONIC FATIGUE, AND DISTURBED SLEEP. IN THE LAST SEVERAL YEARS, FIBROMYALGIA HAS ADVANCED FROM A SYNDROME TO A DISEASE...A DISEASE OF THE CENTRAL NERVOUS SYSTEM, AND CURRENTLY CLASSIFIED AS A NEUROENDOCRINEIMMUNE DISEASE BY SEVERAL NATIONAL ORGANIZATIONS .

IT HAS ALSO BEEN STATED THAT FMS IS A DYSFUNCTION OF THE BIOCHEMICAL INFORMATIONAL SUBSTANCES OF THE BRAIN CALLED PEPTIDES, HORMONES, AND NEUROTRANSMITTERS. WHEN THESE BIOCHEMICAL SUBSTANCES ARE DISRUPTED BY A STIMULUS AND OR A TRAUMA, THE BRAIN TRANSMITS EXTREME PAIN LEVELS (HYPERALGESIA) CAUSING THE WIDESPREAD PAIN IN THE MUSCLES, FASCIA (lining of the muscles) TENDONS AND LIGAMENTS OF THE BODY,THUS IT IS THE INABILITY OF THE BRAIN TO REGULATE THESE SUBSTANCES TO STOP THE MESSAGE OF PAIN. FM PAIN IS REFERRED TO AS ALLODYNIA (long standing increase in pain perception). THE EXTREME PAIN LEVELS MAY BE DEBILITATING CAUSING ONE TO LIVE IN RESTRICTED MOVEMENT AND FEAR.

FIBROMYALGIA AFFECTS ALL THE PHYSIOLOGICAL AND METABOLIC PROCESSES OF THE BODY. THEREFORE, ONE MIGHT CONSIDER THE POSSIBILITY OF SOME TYPE OF METABOLIC GLITCH, WHICH LEADS TO THE CASCADE OF PROBLEMS IN THE WAY THAT THE BODY'S RESPONSES FUNCTION TO VARIOUS STIMULI.

THE SUPPORT GROUP DOES NOT CONSIDER FIBROMYALGIA TO BE AN AUTO-IMMUNE DISEASE (http://chronicfatigue.about.com/od/whatisfibromyalgia/f/fibroautoimmune.htm).

1. Autoimmune The Cause & The Cure by Annesse Brockley and Kristen Urdiales.

2. Chemical Cuisine: Do you REALLY know what you're eating? by Gloria Gilbere, DA Hom, PhD.

3. I Was Poisoned By My Body...I have a gut feeling you could be, too by Gloria Gilbere, DA Hom, PhD.

4. Pain/Inflammation Matters by Gloria Gilbere, DA Hom, PhD.

5. Food That Helps Win the Battle Against Fibromyalgia by Deirdre Rawlings, PhD, ND.

6. Foods That Fight Fibromyalgia by Deirdre Rawlings, PhD, ND.

7. Treating & Beating Anxiety & Depression by Rodger Murphree, DC, CNS.

8. Treating & Beating Fibromyalgia & Chronic Fatigue Syndrome by Rodger Murphree, DC, CNS.

9. FibroWHYalgia: Why Rebuilding the 10 Root Causes of Chronic Illness Restores Chronic Wellness by Sue Ingbretson.

10. Beat Sugar Addiction Now by Jacob Teitelbaum, MD.

11. Beat Sugar Addiction Now Cookbook by Jacob Teitelbaum, MD.

12. From Fatigued to Fantastic! by Jacob Teitelbaum, MD.

13. Pain Free 1-2-3! A Proven Program to Get YOU Pain Free! by Jacob Teitelbaum, MD

 SYMPTOMS of Fibromyalgia
WIDESPREAD REGIONS OF PAIN AND TENDERNESS THROUGHOUT THE BODY.

SLEEP DYSFUNCTION WITH NON-REFRESHING SLEEP, INSOMNIA, MULTIPLE AWAKENINGS, NIGHT SWEATS, MORNING STIFFNESS, AND FOGGINESS.

FLUCTUATING FATIGUE AND THE NEED TO CAT NAP AND/OR CHRONIC FATIGUE SYNDROME.

"FIBROFOG", SHORT-TERM MEMORY IMPAIRMENT, TROUBLE CONCENTRATING, DIRECTIONAL DISORIENTATION.

IMMUNE SYSTEM DYSFUNCTION AND/OR SPECIFIC AUTOIMMUNE DISEASES.

HISTORY OF MULTIPLE AILMENTS, WHICH MAY INCLUDE-

LUPUS, DEPRESSION, MOOD SWINGS, HEADACHES, MIGRAINES, TMJ , POST-TRAUMATIC STRESS SYNDROME, CANDIDA, SINUSITIS, ALLERGIES, MULTIPLE CHEMICAL SENSITIVITIES, ENVIRONMENTAL ILLNESS, REFLUX, IBS, IRRITABLE BLADDER/BOWEL, RAYNAUD'S SYNDROME, RESTLESS LEG SYNDROME, NUMBNESS, CARPAL TUNNEL SYNDROME, WEAKNESS, MYOFASCIAL PAIN SYNDROME, SJOGREN'S, PERIPHERAL NEUROPATHY, OSTEO and/or RHEUMATOID ARTHRITIS, AND MORE...

RESEARCH BOOKS FOR FM/CFS/ME

1. Adrenal Fatigue: The 21st Century Stress Syndrome by James L. Wilson

2. Chronic Fatigue Syndrome, Fibromyalgia and other Invisible Illnesses: The Comprehensive Guide by Katrina Berne and Daniel L. Peterson

3. Defeat Chronic Fatigue Syndrome Now! - Martha Kilcoyne

4. Doctor's Guide to Chronic Fatigue Syndrome - David Bell

5. Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia - Alison Bested

6. Your Symptoms are Real by Dr. Natelson

7. Open-Focus Brain by Les Fehmi and Jim Robbins

 

PANEL OF OFFICERS


Linda Osborn


Arlene Porter



Executive Officers

Linda J. Osborn, Past Lead Coordinator Chapter. 215-886-6163

Arlene B. Porter, Lead Coordinator Chapter. 215-393-3493

The Support Group's e-mail address is: Arlene.NEFibro@gmail.com E-mail: ArlenePorter@verizon.net

SCIENTIFIC ADVISORY BOARD Luc Jasmin, M.D., PhD, Neuroscience

David J. Chesner, D.O. Past Medical Advisor & Current Advisor Emeritus, Rheumatology





Contributions needed & appreciated. Your donations help the Support Group to keep information free and available to the public and help continue our advocacy, education, and awareness for our community. Donations for the Group are made payable to - The Northeast-Community Fibromyalgia/CFS Support Group and sent to Arlene Porter, Lead Coordinator.
Please call for additional information and address. 215-393-3493.


 
 NORTHEAST-COMMUNITY FIBROMYALGIA/CFS SUPPORT GROUP
Lansdale, PA
phone: 215-393-3493

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